Autism & Developmental

Consistent stress profiles in mothers of children with autism.

Koegel et al. (1992) · Journal of autism and developmental disorders 1992
★ The Verdict

Moms of kids with autism feel the same four stress points everywhere, but newer work says biology and dad mood shape the story.

✓ Read this if BCBAs running parent training or stress screens in autism clinics.
✗ Skip if Clinicians who only work with autistic adults or non-parent caregivers.

01Research in Context

01

What this study did

Koegel et al. (1992) gave a stress survey to mothers of children with autism. They wanted to see if moms felt the same kind of stress no matter their culture or the child’s age.

The survey asked about four areas: daily help the child needs, thinking delays, lost family chances, and worry about lifelong care.

02

What they found

All moms scored high in the same four spots. Culture, child age, or child skills did not change the pattern.

The team called this a “consistent stress profile” for moms of kids with autism.

03

How this fits with other research

Stéphanie-Vassos et al. (2023) later added spit-cortisol data and found four mom groups, not one. Some moms had low stress biology even when they said they were stressed. The 1992 survey-only method missed these hidden types.

Capio et al. (2013) tracked daily cortisol and showed two curves: about two-thirds of moms had flat, “blunted” stress hormones linked to worse health. This gives body proof to the 1992 profile.

Falk et al. (2014) next showed mom thoughts and money support predict stress better than child traits. They kept the 1992 four domains but explained them with parent-level, not child-level, causes.

04

Why it matters

You can now move past “mom is stressed” and look at four clear targets: daily help, thinking delays, lost family chances, and lifelong care worry. Ask quick survey questions on each area, then check cortisol if you have lab links. Add a hardiness or self-compassion scale to spot who needs the first call. Share results with dads; Hastings (2003) warns a dad’s low mood can raise mom’s score even when the child is calm.

Free CEUs

Want CEUs on This Topic?

The ABA Clubhouse has 60+ free CEUs — live every Wednesday. Ethics, supervision & clinical topics.

Join Free →
→ Action — try this Monday

Add a four-item parent survey on dependency, cognition, lost opportunities, and future care before your next session.

02At a glance

Intervention
not applicable
Design
survey
Population
autism spectrum disorder
Finding
not reported

03Original abstract

The present study extends the area of research on stress in parents of autistic children. In this study we used the Questionnaire on Resources and Stress (Holroyd, 1987) to compare the stress profiles across mothers (a) who lived in different cultural and geographic environments; (b) who had children of different ages; and (c) who had children with different functioning levels. Results showed a characteristic profile that was highly consistent across each of these subgroups. Major differences from the normative data occurred on scales measuring stress associated with dependency and management, cognitive impairment, limits on family opportunity, and life-span care. Results suggest the importance of developing treatment programs aimed at reducing stress in specific areas in families with autistic children.

Journal of autism and developmental disorders, 1992 · doi:10.1007/BF01058151