Changes in skills for people with intellectual disability: a follow-up of the Camberwell Cohort.
Severe IDD and autism do not freeze development—skills can still improve into adulthood, especially if you start young.
01Research in Context
What this study did
Rose et al. (2000) tracked the same group of UK children with severe intellectual disability or autism for up to twenty years. They checked communication, self-care, and thinking skills again and again.
The team wanted to see if these skills grew, stayed flat, or dropped as the kids got older.
What they found
Most kids made slow but real gains in talking, dressing, and problem-solving. The youngest children at the first visit improved the most.
Skill growth did not stop in the teen years; progress kept going into early adulthood.
How this fits with other research
Huang et al. (2026) show the same upward slope in self-care, but only up to age four. After that, growth flattens. The UK cohort proves gains can continue if you watch longer.
Brignell et al. (2017) looks like the opposite: they saw toddlers later diagnosed with autism lose words between 12-24 months. The key difference is age. Babies may dip, but school-age kids in the Camberwell study still climb.
Davison et al. (2002) add a parent piece: when caregivers matched their play to the child’s focus, language gains were larger over the next sixteen years. Early age helps, but responsive parenting helps too.
Why it matters
Keep teaching daily living and communication skills even when clients look ‘too old.’ The data say growth can still happen in the twenties. Start early for the biggest payoff, but never shut the door.
Get CEUs on This Topic — Free
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Add one new age-appropriate self-care target to the ISP of your oldest client—then track it for three months.
02At a glance
03Original abstract
The skills of a total population of children with severe intellectual disability and/or autism from Camberwell, South London, UK, and the initial follow-up data, taken when the subjects were adolescents and young adults (Shah 1986), are described in the present study. Changes in skills over time are presented within the categories of communication, self-care, and educational and cognitive skills, as assessed by the Handicaps, Behaviours and Skills schedule. The results indicated that skills had improved in many areas between times 1 and 2, but that this improvement was more noticeable for the children who had been youngest at time 1. The implications of these results and predictions for a further follow-up study are discussed.
Journal of intellectual disability research : JIDR, 2000 · doi:10.1046/j.1365-2788.2000.00245.x