What it's like to grow older: the aging perceptions of people with an intellectual disability in Ireland.
Adults with ID in Ireland say their health is good but their words reveal fear and gloom about aging.
01Research in Context
What this study did
The team asked adults with intellectual disability in Ireland how they feel about getting older.
They used a survey plus computer text tools to dig into the words people chose.
The study was part of a bigger Irish project that Amore et al. (2011) mapped out earlier.
What they found
More than half said their health was good when asked directly.
Yet the text analysis showed most words about aging were negative.
People talked about loss, fear, and being left out.
How this fits with other research
Amore et al. (2011) set up the same large cohort and showed you can recruit 45% of adults with ID if you keep visits short and speak with caregivers first.
Jarrold et al. (1994) tried pre-retirement classes in the U.S. and also saw knowledge go up while feelings stayed flat, matching the new gap between facts and mood.
Lee et al. (2019) asked families about future planning and heard worry; the current study shows the worry lives inside the adults too, not just the relatives.
Why it matters
Your clients may say they are fine yet carry dark thoughts about aging. Add open questions like What scares you about getting older? to annual assessments. Pair those questions with simple mood checks so negative views do not hide behind a polite good health answer.
Want CEUs on This Topic?
The ABA Clubhouse has 60+ free CEUs — live every Wednesday. Ethics, supervision & clinical topics.
Join Free →Add one open question about aging fears to your next client interview and note any negative words you hear.
02At a glance
03Original abstract
The Intellectual Disability Supplement to The Irish Longitudinal Study on Ageing is a national longitudinal study on the aging of people with an intellectual disability (ID) using a randomly selected sample of people with ID over the age of 40. In total, 367 people with an ID completed the aging perception self-report only section. Over 57% of people described their health as very good to excellent with no significant difference in health perceptions found for gender, level of ID, or living circumstance. Exploring people's perceptions utilizing PASW Text Analytics for Surveys 4.1 perceptions often supported negative views of the consequences of aging. These findings suggest challenging negative aging concepts is essential to promote positivity with associated improved health and wellbeing.
Intellectual and developmental disabilities, 2014 · doi:10.1352/1934-9556-52.3.205