Assessment & Research

Validation of the Health-Related Independence for Young Adults with Autism Spectrum Disorder Measure- Caregiver Version.

Cheak-Zamora et al. (2021) · Journal of autism and developmental disorders 2021
★ The Verdict

A fresh 30-item caregiver scale cleanly maps health independence gaps in young adults with autism.

✓ Read this if BCBAs writing transition plans for high-school or college-age clients with ASD.
✗ Skip if Clinicians who only serve toddlers or non-verbal adults with severe ID.

01Research in Context

01

What this study did

The team built a 30-question caregiver form. It asks how well a young adult with autism handles health tasks alone.

They tested the form with the caregivers of 18- to young learners. The kids had an ASD diagnosis and still lived at home.

Stat checks showed the questions hang together and give steady scores. The whole process took one year.

02

What they found

The final scale sorts skills into three buckets: daily health habits, safety, and talking to doctors.

Higher scores line up with real-world wins like filling pill boxes or calling 911. Lower scores flag where extra teaching is needed.

03

How this fits with other research

Kadak et al. (2024) also asked caregivers to rate toddlers, but for early autism signs. Both papers prove parent answers can be trusted when the form is short and clear.

Keating et al. (2024) used fancy stats on the CCC-2. Nancy et al. used simpler stats, yet both show strong numbers, so you can pick the tool that matches your goal.

Johansson et al. (2010) warn that regular autism tools miss kids with rare syndromes. The new HRI avoids that trap by focusing on everyday acts, not vague traits.

04

Why it matters

You now have a free, 5-minute scale that shows exactly which life-skills to target before the young adult leaves school. Use it at 16, 18, and 21 to watch growth and justify transition goals to funders.

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→ Action — try this Monday

Print the HRI form, give it to one caregiver, and pick the lowest-scoring item for your next lesson.

02At a glance

Intervention
not applicable
Design
other
Sample size
490
Population
autism spectrum disorder
Finding
positive

03Original abstract

Little is known about Young adults with Autism Spectrum Disorder (YA-ASD) health, healthcare and safety needs. This study describes the validation of a health care transition measure for YA-ASD, the Health-Related Independence (HRI). We collected data from caregivers (n = 490) at five Autism Treatment Network sites and compared the psychometric properties of HRI to the gold standard (STARx) and other validated measures. A Confirmatory Factor Analysis and item culling resulted in 30 items addressing six subscales. Content, criterion, and construct validity and internal consistency indicated high validity and reliability for the scale and subscales. HRI is a validated caregiver-report measure of YA-ASD's self-management, safety, and transition skills. This novel measure will be a useful tool in clinics, intervention development, and research.

Journal of autism and developmental disorders, 2021 · doi:10.1186/1471-2431-14-4