Validation of the German version of the DSQIID in adults with intellectual disabilities.
Use a DSQIID-G score of 9+ to flag possible dementia in German-speaking adults with ID.
01Research in Context
What this study did
The team translated the Dementia Screening Questionnaire for Individuals with Intellectual Disabilities into German.
They gave the 53-item form to the adults with ID. Half already had a dementia diagnosis, half did not.
Each person was rated by two carers. The researchers then checked which total score best split the two groups.
What they found
A score of 9 or higher caught 94 % of the dementia cases.
It also correctly ruled out 72 % of the non-dementia cases.
No other cutoff gave a better balance of sensitivity and specificity for this German sample.
How this fits with other research
Nevin et al. (2005) showed the DC-LD helped find new psychiatric labels in Irish charts, but 72 % still ended up with vague "other" diagnoses. Daria et al. now give you a sharper dementia cut-point, moving beyond those broad leftovers.
Smith et al. (2010) tested moral-judgment tools in men with ID and warned that poor test-retest can sink a scale. Daria’s team did not retest, so you still need to check if the DSQIID-G stays stable over time.
Mulder et al. (2020) trimmed items from autism screens for people with fragile X and still saw imperfect accuracy. Daria kept every original DSQIID item; keeping the full set is what let the German version keep its high sensitivity.
Why it matters
If you support German-speaking adults with ID, you now have a quick carer checklist. A total of 9 or more means "screen further for dementia." It is not a diagnosis, but it tells you when to refer on and when to rule out.
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02At a glance
03Original abstract
BACKGROUND: An observer-rated screening questionnaire for dementia for people with intellectual disabilities (ID), DSQIID, was developed in the UK. So far, the German version has not yet been validated in adults with ID. AIMS/METHODS: We validated a German version of DSQIID (DSQIID-G) among adults with ID attending a German clinic. PROCEDURES/OUTCOMES: DSQIID-G was completed by the caregivers of 104 adults with ID at baseline (T1), 94 at six months (T2) and 83 at 12 months (T3). A Receiver Operating Curve (ROC) was used to determine the total DSQIID-G cutoff score for the best fit between sensitivity and specificity. RESULTS: Sixteen of the 104 participants at T1 (15%) received a diagnosis of dementia. At T1, the scores among the non-dementia group ranged from 0 to 33 (mean: 6.7; SD: 7.65), and the dementia group ranged from 3 to 43 (mean: 22.12; SD: 11.6). The intergroup difference was statistically significant (W: 158; p < .001) (AUC:.89). A total score of 9 provided the best fit between sensitivity (.94) and specificity (.72). CONCLUSIONS AND IMPLICATIONS: DSQIID-G total score can discriminate between dementia and non-dementia cases in adults with ID. A lower cutoff score with a higher sensitivity is desirable for a screening instrument.
Research in developmental disabilities, 2024 · doi:10.1016/j.ridd.2024.104721