Assessment & Research

The prevalence of intellectual disability in Limburg, the Netherlands.

van Schrojenstein Lantman-de Valk et al. (2006) · Journal of intellectual disability research : JIDR 2006
★ The Verdict

Only about 1 in 150 people in Limburg have ID, and over half of those living independently receive no specialized services.

✓ Read this if BCBAs working with adults with ID in Dutch community settings
✗ Skip if Clinicians looking for intervention data or non-Dutch prevalence rates

01Research in Context

01

What this study did

van Schrojenstein Lantman-de Valk et al. (2006) counted how many people in Limburg, the Netherlands, have intellectual disability (ID).

They used local records and checked who was getting ID services and who was not.

02

What they found

About 1 in every 150 people in Limburg has ID. That is 0.64–0.70 % of the whole population.

More than half of the adults who live on their own never use ID services.

03

How this fits with other research

Moss et al. (2009) looked at the same Dutch adults and found 1 in 6 had high blood pressure. This builds on the 2006 count by adding a common health risk.

Tyrer et al. (2009) widened the age lens to 50-90 years and showed most older adults with ID have poor diet and 70 % carry too much belly fat. The 2006 paper gives the base numbers; the 2009 paper flags what to watch for as clients age.

Morad et al. (2007) ran a similar head-count in Israeli residential centers and found 1 in 12 adults with ID had constipation. Both studies use the same cross-sectional design, but in different countries and for different health issues.

04

Why it matters

If you work in the Netherlands, expect only a handful of clients with ID in each town. Most adults you meet will not be connected to services, so you may be their first link to support. Screen for common problems like hypertension and poor diet early, and use simple language to explain why follow-up helps.

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Ask every new adult client, 'Are you already using any disability services?' If not, offer linkage.

02At a glance

Intervention
not applicable
Design
other
Population
intellectual disability
Finding
not reported

03Original abstract

BACKGROUND: Current changes in care philosophy and diversity in care arrangements caused the need for a new estimate of the number of people with intellectual disability (ID), based on recent data. Previous estimates were based on client registrations, which was thought unreliable at this time. This manuscript studies the question how many people with ID can be found in (part of) the Netherlands. METHODS: Identification of people with ID through a combination of general practice (GP) data bases and service registrations in the province of Limburg. RESULTS: The prevalence of people with ID appeared to be between 0.64% and 0.70%. About 0.21-0.27% were living with family or on their own; 55% of them did not use common ID services. CONCLUSION: Results are based on a combination of identification methods. Thirteen per cent of uncertain cases led to minimum and maximum estimates of the population. Limitations of the method and alternative ways of data collection are discussed.

Journal of intellectual disability research : JIDR, 2006 · doi:10.1111/j.1365-2788.2005.00733.x