Assessment & Research

Test battery for the diagnosis of dementia in individuals with intellectual disability. Working Group for the Establishment of Criteria for the Diagnosis of Dementia in Individuals with Intellectual Disability.

Burt et al. (2000) · Journal of intellectual disability research : JIDR 2000
★ The Verdict

A global team handed us a ready-to-use dementia test set for adults with ID—grab it and start collecting baseline data now.

✓ Read this if BCBAs who evaluate or serve adults with intellectual disability in day programs, group homes, or clinics.
✗ Skip if Practitioners working only with children or with typically developing dementia patients.

01Research in Context

01

What this study did

An international team of doctors and psychologists met to solve a big problem. Adults with intellectual disability were showing memory loss and confusion, but no one agreed on how to test for dementia.

The group wrote a step-by-step test battery. It mixes caregiver interviews, simple memory games, and daily-living checks. The goal was to give every clinic the same playbook.

02

What they found

The paper does not give patient data. It only shares the final agreed battery and tips for using it. Think of it as a new ruler: the tool is ready, but no one has measured anything yet.

03

How this fits with other research

Lucock et al. (2019) later counted every behavior-analytic study on this topic. They found only six. Their map shows why the 2000 battery was needed: almost no tools existed.

Cooper et al. (2003) built on the same idea. Their DC-LD system covers all psychiatric diagnoses in adults with ID and hit 96 % agreement with expert doctors. It is the younger, wider cousin of the 2000 dementia-only battery.

Mace et al. (1990) warned that depression can look like dementia in elders with ID. The 2000 battery added mood questions to avoid that trap, turning an old worry into a built-in check.

04

Why it matters

If you assess adults with ID, you now have a free, standard form to rule in or rule out dementia. Pair it with DC-LD when you need a full psychiatric picture. Start the battery early; repeated runs give you a clear slope of decline or stability you can show to families and physicians.

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→ Action — try this Monday

Print the battery, pick one adult with ID on your caseload, and complete the caregiver interview section before lunch.

02At a glance

Intervention
not applicable
Design
methodology paper
Population
intellectual disability
Finding
not reported

03Original abstract

A working battery of tests for the diagnosis of dementia, which is applicable to most adults with intellectual disability, is proposed by an international Working Group. The battery, reflecting contemporary research and practice findings, includes scales for informant report of functioning and tests for direct assessment. The Working Group recommends the international use of the battery both as part of ongoing and new longitudinal research, and in clinical practice. The widespread use of a common battery will enhance communication and collaborative opportunities among researchers and clinicians at various sites, and will help to standardize diagnostic protocols and research findings. The collaborative evaluation of such a battery will address one of the greatest challenges in the field, that of differentiating change associated with ageing from that associated with dementia.

Journal of intellectual disability research : JIDR, 2000 · doi:10.1046/j.1365-2788.2000.00264.x