Teaching persons with profound multiple handicaps: a review of the effects of behavioral research.
Behavior change is empty unless it lifts quality of life for people with profound disabilities.
01Research in Context
What this study did
Goldstein et al. (1991) read every behavioral study they could find on people with profound multiple handicaps. They looked for proof that the teaching tricks we use actually make life better, not just change behavior. After sorting dozens of papers, they concluded we still lack good evidence for real-life gains.
What they found
The team saw that behavioral procedures could alter responses, such as increasing hand-raising or reducing self-hits. Yet almost none of the studies linked those changes to meaningful life outcomes like more friends, safer homes, or fuller days. In short, we were winning small battles while losing the quality-of-life war.
How this fits with other research
Reichow (2012) paints a brighter picture. Five meta-analyses show early intensive ABA raises IQ and daily skills in preschoolers with autism. The gains are medium-sized and hold across tests, giving later studies a benchmark the 1991 paper never had.
Eldevik et al. (2006) adds a caution. Low-intensity ABA (about 12 hours a week) still beats eclectic care, but the gains are tiny and may not matter day-to-day. Their data extend the 1991 warning: without enough hours, even solid methods can fall short of meaningful change.
Yuwiler et al. (1992) offers hope. Eleven mothers with developmental disabilities learned child-care skills to 90 % mastery through behavioral parent training, and kids stayed healthy for months. This single-case success shows meaningful life improvement is possible when teaching is precise and linked to real needs.
Why it matters
For BCBAs, the takeaway is simple: measure what matters. After each program, ask if the learner now eats lunch with peers, sleeps through the night, or chooses their own clothes. If the answer is no, boost intensity, tweak targets, or pick a new measure. Tie every graph to a life outcome parents can feel next week, not just a statistic you can publish next year.
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02At a glance
03Original abstract
The behavioral research on teaching individuals who have profound multiple handicaps is reviewed. The primary focus is on determining the degree to which behavioral research has demonstrated the teaching of meaningful skills to this population. Results of the review indicate that investigations have demonstrated, albeit inconsistently, that behavior change has resulted from contingency management interventions with persons who have profound multiple handicaps. However, there is little evidence that such interventions have resulted in meaningful behavior change according to currently accepted criteria for beneficially affecting the quality of life of persons with serious handicaps. Potential explanations for the lack of such evidence are offered, including the relative lack of research attention given to this issue, the possible ineffectiveness of the components of the technology applied, and possible ineffective application of the potentially effective technology. Suggestions for future research are discussed in terms of developing more effective educational and habilitative services for persons with profound multiple handicaps. In particular, we suggest research on a wider variety of behavioral teaching procedures, providing more comprehensive evaluations of the applications of procedures and developing treatment programs that do not focus solely on traditional skill acquisition.
Journal of applied behavior analysis, 1991 · doi:10.1901/jaba.1991.24-319