Assessment & Research

Sleep problems in a population-based cohort of primary school age children with Cerebral Palsy.

Whittingham et al. (2024) · Research in developmental disabilities 2024
★ The Verdict

Nearly half of primary-school kids with CP have clinically significant sleep problems—screen for epilepsy, pain, and behavior issues.

✓ Read this if BCBAs serving school-age children with cerebral palsy in clinic, school, or home settings.
✗ Skip if Practitioners who work only with typically developing children or adults.

01Research in Context

01

What this study did

Koa and team sent a short sleep survey to families of 8- to 12-year-old children with cerebral palsy. They asked about bedtime, night waking, pain, behavior, and epilepsy.

The survey gave each child a sleep-problem score. The researchers then looked at which medical or behavioral factors went hand-in-hand with a high score.

02

What they found

Almost half of the children scored in the clinical range for sleep problems. Sleep trouble was strongest in kids who also had epilepsy, pain, or behavior difficulties.

Poor sleep quality dragged down the child’s overall quality of life, not just the night.

03

How this fits with other research

The 44 % rate echoes Paavonen et al. (2008), who saw over half of kids with Asperger syndrome struggle with sleep. Both papers make the same point: screen for sleep at every visit.

Cheng et al. (2021) surveyed younger children with autism and found two-thirds had sleep problems. The numbers differ, but the message matches—neurodevelopmental diagnoses carry high sleep risk.

Hsiao et al. (2008) showed that treating obstructive sleep apnea with adenotonsillectomy or CPAP lowered sleep disturbance in CP. Koa’s study did not test treatment, yet it flags the same red flags—epilepsy, pain, behavior—that clinicians should act on.

Agar et al. (2020) watched Angelman kids and saw pain behaviors right before night waking. Koa links pain-related quality of life to sleep problems in CP. Together they tell you: rule out pain before you blame behavior or habit.

04

Why it matters

If you work with school-age kids who have CP, add three quick questions to your intake: Any seizures lately? Night pain? New behavior spikes? A positive answer earns a sleep screen. Treating the found issues—adjusting seizure meds, adding pain relief, or referring for apnea evaluation—can improve both nights and days for the child and the family.

Free CEUs

Want CEUs on This Topic?

The ABA Clubhouse has 60+ free CEUs — live every Wednesday. Ethics, supervision & clinical topics.

Join Free →
→ Action — try this Monday

Add a 3-item sleep screener (epilepsy update, pain report, behavior change) to your next session note and flag any yes answers for the medical team.

02At a glance

Intervention
not applicable
Design
other
Sample size
86
Population
developmental delay
Finding
not reported

03Original abstract

AIMS: To examine sleep problems in a population-based sample of school-aged children (8-12yo) with Cerebral Palsy (CP) METHOD: Eighty-six children (mean 9 years, 5 months, SD = 1 year, 6 months; male = 60) with CP (Gross Motor Function Classification System; GMFCS I=46; II=21; III=9; IV=6; V=6) participated. Classifications/assessments included: Sleep Disturbance Scale for Children (SDSC), Gross Motor Function Measure (GMFM-66), Manual Ability Classification System (MACS), Communication Function Classification System (CFCS), Strengths and Difficulties Questionnaire (SDQ) and the Cerebral Palsy- Quality of Life (CP-QOL) Pain Impact subscale. Analysis included linear and logistic regression. RESULTS: 38 (44 %) children were within the clinical range for sleep problems. Sleep problems were significantly associated with epilepsy, (95 % CI) = 14.48 (7.95 to 21.01), gross motor function, -0.13 (-0.26 to -0.01), manual ability, 7.26 (0.82 to 13.69), communication, 10.01 (2.21 to 17.80), child behaviour, 1.134 (0.74 to 1.53), and pain related QOL, 0.33 (0.12 to 0.53). For the multivariable model, sleep problems remained significantly associated with epilepsy, b (95 % CI) = 11.72 (4.88 to 18.57), child behaviour, 1.03 (0.65 to 1.41) and pain-related QOL, 0.21 (0.29 to 0.38). CONCLUSIONS: Sleep problems are common and associated with epilepsy, child behaviour and pain related QOL.

Research in developmental disabilities, 2024 · doi:10.1016/j.ridd.2024.104690