Severity of Autism Spectrum Disorders: Current Conceptualization, and Transition to DSM-5.
Rate DSM-5 autism severity by the supports a child truly needs, not by symptom tally alone.
01Research in Context
What this study did
Schertz et al. (2016) wrote a narrative review. They asked how DSM-5 autism severity levels should be set.
They looked at the new rule book. They said severity must reflect how much support a child needs, not just how many symptoms are present.
The authors listed tools that give this bigger picture. These include adaptive living scales, language tests, and behavior checklists.
What they found
The paper concludes that Level 1, 2, or 3 should describe daily-life support needs. Counting social-communication or repetitive behaviors alone is not enough.
Clinicians need extra data. Adaptive skills, spoken language, and problem behavior all feed into the final level.
How this fits with other research
McGarty et al. (2018) extends this idea. In a large clinic sample they showed that DSM-5 support levels line up with real cognitive and adaptive scores. Kids rated Level 3 had the lowest scores. The review’s advice now has numbers behind it.
Matson et al. (2013) and van Timmeren et al. (2016) seem to clash. L et al. found tuned toddler cut-offs kept sensitivity high. A et al. saw low specificity in preschoolers. The gap is age and method. L et al. used ROC tweaks; A et al. used plain DSM-5 rules. Both agree that young kids need careful re-checks, so the views fit together.
Craig et al. (2017) adds another layer. Their ACSF:SC social-communication tool moves in step with DSM-5 levels. Using both gives a clearer picture than either alone.
Why it matters
When you assign a severity level, look past the ADOS score. Add an adaptive scale, a language sample, and a sensory profile. This matches DSM-5 intent and keeps later teams from under- or over-estimating support needs.
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02At a glance
03Original abstract
Mirroring the evolution of the conceptualization of autism has been changes in the diagnostic process, including the most recent revisions to the DSM-5 and the addition of severity-based diagnostic modifiers assigned on the basis of intensity of needed supports. A review of recent literature indicates that in research stratifying individuals on the basis of autism severity, core ASD symptomology is the primary consideration. This conceptualization is disparate from the conceptualization put forth in DSM-5 in which severity determination is based on level of needed support, which is also impacted by cognitive, language, behavioral, and adaptive functioning. This paper reviews literature in this area and discusses possible instruments that may be useful to inform clinical judgment in determining ASD severity levels.
Journal of autism and developmental disorders, 2016 · doi:10.1007/s10803-016-2731-7