Reliability and validity of parent- and child-rated anxiety measures in autism spectrum disorder.
RCADS and MASC-2 are sound for kids with ASD, yet parent-child agreement is poor—check IQ and severity before picking which voice to trust.
01Research in Context
What this study did
Researchers checked if two common anxiety scales work for kids with autism. They gave the RCADS and MASC-2 to parents and to the kids themselves.
The team looked at how well the scores hang together and whether parent and child answers match.
What they found
Both scales were reliable and valid for youth with ASD. The bad news: parents and kids rarely agreed on the anxiety level.
Agreement got worse when the child had lower IQ or more severe autism traits.
How this fits with other research
Bearss et al. (2016) took the next step. They ran parent focus groups and built 52 new items that speak autism-specific language. Their work is the sequel you will want to watch.
Shawler et al. (2021) asked the same question in adults. They found that self-report social-anxiety scales work fine for verbally fluent autistic adults. The message: once language is solid, grown-ups can rate themselves.
Bakhtiari et al. (2021) echo the IQ warning. They showed that youth with ASD can complete self-report forms, but validity dips when IQ drops below 80 or attention problems are high.
Why it matters
Use RCADS or MASC-2 with confidence, but always collect both parent and child forms. Treat disagreement as data, not error. If scores clash, look at IQ and autism severity before deciding which report to weight. For kids under 80 IQ or with attention trouble, lean on parent and teacher data until Karen et al. release their autism-tuned scale.
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02At a glance
03Original abstract
Autism spectrum disorder (ASD) and anxiety frequently co-occur. Research on the phenomenology and treatment of anxiety in ASD is expanding, but is hampered by the lack of instruments validated for this population. This study evaluated the self- and parent-reported Revised Child Anxiety and Depression Scale and the Multidimensional Anxiety Scale in Children-2 among 46 youth with ASD. Internal consistency and test-retest reliability were acceptable, but inter-rater reliability was poor. Parent-child agreement was better for youth with higher IQs, less severe ASD symptoms, or more social cognitive skills. Convergent and divergent validity were acceptable. Demographic characteristics were considered as predictors of anxiety: they were unrelated to parent-report, but younger age and more severe ASD were related to increased self-reported anxiety.
Journal of autism and developmental disorders, 2015 · doi:10.1007/s10803-015-2481-y