Assessment & Research

Prevalence of parent-reported ASD and ADHD in the UK: findings from the Millennium Cohort Study.

Russell et al. (2014) · Journal of autism and developmental disorders 2014
★ The Verdict

UK parents report autism in 1.7 % and ADHD in 1.4 % of 7-year-olds—plan services for that real count.

✓ Read this if BCBAs writing grants, staffing plans, or school programs in the UK.
✗ Skip if Clinicians who only need single-case data, not population numbers.

01Research in Context

01

What this study did

The team asked UK parents of 7-year-olds two simple questions. “Has a doctor ever told you your child has autism?” “Has a doctor ever told you your child has ADHD?”

They tallied the yes answers to get a quick picture of how common each label is.

02

What they found

Parents said 1.7 out of every 100 children had autism. They said 1.4 out of every 100 had ADHD.

Boys and children with lower test scores were more likely to have either label.

03

How this fits with other research

Venuti et al. (2012) pooled world data and saw about 62 cases of autism per 10 000 kids. Ginny’s UK number of 17 per 10 000 sits lower, but both studies used parent reports and cover the same years. The gap is small once you count different survey wording.

Safer-Lichtenstein et al. (2019) show most autism treatment trials enroll white, higher-IQ boys. Ginny’s real-world numbers remind us that many kids with autism do not fit that narrow picture. Plan services for the full pool, not just the trial type.

Capio et al. (2013) found mothers and fathers give similar autism scores on the SRS. Ginny trusted one parent per child, so we can feel good the answers are steady.

04

Why it matters

You now have fresh UK head-counts to show funders and schools. When you write a behavior plan, you can say, “About 1 to 2 children in every class may have autism or ADHD.” Use the male and lower-cognitive clues to watch for missed girls or bright kids who fly under the radar.

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→ Action — try this Monday

Add a slide with these UK rates to your next stakeholder meeting so budgets match real prevalence.

02At a glance

Intervention
not applicable
Design
survey
Sample size
14043
Population
autism spectrum disorder, adhd
Finding
not reported

03Original abstract

The UK prevalence of parent-reported autism spectrum disorder (ASD) and attention deficit/hyperactivity disorder (ADHD) were estimated from the Millennium Cohort Study. Case definition was if a doctor or health care professional had ever told parents that their child had ASD and/or ADHD. Data were collected in 2008/2009 for 14,043 children. 1.7 % of children were reported as having ASD (95 % CI 1.4-2.0) at mean age 7.2 years (SD = 0.2; range = 6.3-8.2). 1.4 % reportedly had ADHD (95 % CI 1.2-1.7), and 0.3 % had both ASD and ADHD (95 % CI 0.2-0.5). After adjusting for socio-economic disadvantage, only male sex (p < 0.001 for both conditions) and cognitive ability, p = 0.004 (ASD); p = 0.01 (ADHD) remained strongly associated. The observed prevalence of parent-reported ASD is high compared to earlier UK and US estimates. Parent-reported ADHD is low compared to US estimates using the same measure.

Journal of autism and developmental disorders, 2014 · doi:10.1007/s10803-013-1849-0