Assessment & Research

Prevalence of Autism Spectrum Disorder in 7-9-Year-Old Children in Denmark, Finland, France and Iceland: A Population-Based Registries Approach Within the ASDEU Project.

Delobel-Ayoub et al. (2020) · Journal of autism and developmental disorders 2020
★ The Verdict

Registry autism rates in Europe vary seven-fold, but the spread is about detection, not a true difference in cases.

✓ Read this if BCBAs who compare regional data or set up screening programs in schools or clinics.
✗ Skip if RBTs looking for direct intervention protocols—this paper has no treatment steps.

01Research in Context

01

What this study did

Researchers checked autism counts in 7- to 9-year-olds across four countries. They used each nation's health and school records instead of running new tests.

Denmark, Finland, France, and Iceland supplied the numbers. The team wanted to see if autism rates looked the same in all four places.

02

What they found

Autism prevalence ranged from about one in two hundred kids to about three in one hundred. That is a seven-fold gap between the lowest and highest country.

The authors say the gap is not real biology. It comes from who gets noticed, who gets tested, and how doctors label the results.

03

How this fits with other research

Agiovlasitis et al. (2025) found girls score lower on the ADOS-II. Fewer flagged girls could shrink the count in countries that lean on that tool.

Duvekot et al. (2017) showed girls need bigger behavior problems to earn a diagnosis. This hidden-girl effect helps explain why some registries look smaller.

Bitsika et al. (2019) added that sex differences move depending on ADOS-2 severity. Countries using different severity cut-offs will count different kids.

04

Why it matters

When you read a prevalence report, ask how the region finds and scores kids before you compare it to your caseload. If you assess girls or multilingual learners, use tools and cut scores that catch subtler profiles so your count is fair and early help reaches everyone who needs it.

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Review your intake forms: add a girl-specific and language-level note so subtle profiles don't get missed.

02At a glance

Intervention
not applicable
Design
other
Population
autism spectrum disorder
Finding
not reported

03Original abstract

We estimated autism spectrum disorder (ASD) prevalence in 7-9 year-old children in 2015 using data from three nationwide health registry systems (Denmark, Finland, Iceland) and two French population-based regional registries. Prevalence ranged from 0.48% in South-East France to 3.13% in Iceland (South-West France: 0.73%, Finland: 0.77%, Denmark: 1.26%). Male/female ratios ranged from 3.3 in Finland to 5.4 in South-West France. Between 12% (Denmark) and 39% (South-West France) of cases were diagnosed with intellectual disability. The variations in population-based ASD prevalence across four European countries with universal health care practices likely reflect variation in detection, referral and diagnosis practices and autism awareness across these areas. Using established population-based data systems is an efficient approach to monitor ASD prevalence trends over time.

Journal of autism and developmental disorders, 2020 · doi:10.1001/jamapediatrics.2018.42082716402