Assessment & Research

National disability registers report on causes of intellectual disability in Taiwan: 2000-2007.

Lin et al. (2009) · Research in developmental disabilities 2009
★ The Verdict

Taiwan’s registry showed congenital ID labels falling and disease-related labels rising, prompting a call for newer cause codes that later papers have already built.

✓ Read this if BCBAs who complete intake assessments or file disability paperwork in clinic or school settings.
✗ Skip if Clinicians only providing direct therapy with no role in diagnosis or record-keeping.

01Research in Context

01

What this study did

Lin et al. (2009) looked at Taiwan’s national disability registry. They tracked what doctors listed as the cause of intellectual disability from 2000 to 2007.

The team counted how many cases were labeled “congenital” versus “disease-related.” They wanted to see if the mix of causes was changing over time.

02

What they found

Congenital causes dropped among registered cases. Disease-related causes edged up a little.

In the whole population both types rose slightly, but the shift inside the registry pushed the authors to say Taiwan’s cause codes need an update.

03

How this fits with other research

Konstantareas et al. (1999) built a tree-shaped ICD-10 map for Finland 10 years earlier. Their ready-made labels could answer Taiwan’s 2009 call for better categories.

Fahmie et al. (2013) went further than the registry. They followed Utah babies from birth and still saw socioeconomic risk after removing genetic cases. The birth-cohort design adds depth to Taiwan’s snapshot.

Tassé et al. (2013) supplied the fix Taiwan wanted. Their AAIDD position paper gave ICD-11 new terms for intellectual disability, directly updating the old codes Taiwan found lacking.

04

Why it matters

If you write eval reports or sit on diagnostic teams, know that cause labels are shifting. Use the newer ICD-11 terms from Tassé et al. (2013) and borrow the Finnish tree if you need clear, parent-friendly explanations. Updating your intake forms now keeps your files in line with tomorrow’s registry standards.

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Swap any old “mental retardation” or vague cause codes on your intake sheet for the new ICD-11 intellectual-disability terms plus a checkbox for congenital vs. acquired.

02At a glance

Intervention
not applicable
Design
other
Population
intellectual disability
Finding
not reported

03Original abstract

The main purposes of the present analysis were to describe the causes of intellectual disability (ID) and examine its overtime change from 2000 to 2007 in Taiwan. Data of the present study mainly come from the public web-access information which collected by the Department of Statistics, Ministry of the Interiors, Taipei, Taiwan. Data were obtained from two ways of 2000-2007 national data: (1) The physically and mentally disabled population by cause; (2) Taiwan general population by age. The present results found that the congenital disability and the disease were the main causes among the ID population in Taiwan. The overtime trend (2000-2007) of causes among the ID population illustrated that the percentage of congenital-caused ID was decreasing and the disease-caused ID was increasing slightly. However, both of above two causes - congenital- and disease-caused ID prevalence - were increasing slightly in the Taiwan general population in the year 2000-2007. The present analysis suggests that the current disability registers should re-examine the ID-caused categories according to the evidence-based literatures regarding attributive risks for this group of people in Taiwan.

Research in developmental disabilities, 2009 · doi:10.1016/j.ridd.2008.05.003