Assessment & Research

Low prevalence of abnormal cervical cytology in an institutionalized population with intellectual disability.

Jaffe et al. (2002) · Journal of intellectual disability research : JIDR 2002
★ The Verdict

Abnormal cervical cytology is rare in institutionalized women with ID, so annual Pap smears may be unnecessary.

✓ Read this if BCBAs and nurses working with adult women in residential disability centers.
✗ Skip if Clinicians serving community-dwelling women or general gynecology patients.

01Research in Context

01

What this study did

Doctors looked back at Pap smear records for 162 women living in a large disability center. All women had intellectual disability and lived in the facility full-time.

The team counted how many tests showed abnormal cells. They wanted to know if yearly cervical screening was really needed for this group.

02

What they found

Only three tests came back abnormal. Just one woman had true cell changes that needed follow-up. That is less than two out of every hundred women.

The low count suggests cervical cancer risk is tiny in this setting. Annual screening may create stress and cost without benefit.

03

How this fits with other research

Hsieh et al. (2025) ran a similar city-wide survey in the same Taipei centers. They counted eye diseases instead of cervix changes, but both studies used the same kind of record review.

Fahmie et al. (2013) also screened institutional adults with ID, yet they found pain went unnoticed in 18 percent of residents. Together these papers show some health problems are common while others are rare.

The pattern helps you decide where to spend limited nursing time. Check for pain often, but rethink yearly Pap smears.

04

Why it matters

If you serve women with ID in residential care, you can use these data to advocate for less frequent cervical screening. Fewer invasive exams mean less anxiety and more staff time for higher-priority care like pain checks or bone health screens. Always follow local guidelines, but bring this low-risk evidence to the next medical team meeting.

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→ Action — try this Monday

Review the current Pap smear schedule for your female residents and propose a longer interval if medical staff agree.

02At a glance

Intervention
not applicable
Design
case series
Sample size
162
Population
intellectual disability
Finding
not reported

03Original abstract

BACKGROUND: The present study was designed to determine the prevalence of abnormal cervical cytology in an institutionalized population with intellectual disability. METHOD: A retrospective review of charts for 162 women at a large state-owned facility was performed. Slides from 310 cervical Papanicolau smears were re-screened by a cytotechnologist and then reviewed by a pathologist. RESULTS: The prevalence of abnormal cytology (three out of 162 participants) and biopsy confirmed that the prevalence cervical dysplasia (one out of 310 smears) was low. CONCLUSION: The present preliminary study suggests that further investigation of the optimal interval for cervical cancer screening is warranted in this population.

Journal of intellectual disability research : JIDR, 2002 · doi:10.1046/j.1365-2788.2002.00439.x