How has DSM-5 Affected Autism Diagnosis? A 5-Year Follow-Up Systematic Literature Review and Meta-analysis.
DSM-5 trims autism diagnoses by about one-fifth, so double-check eligibility each time you reassess.
01Research in Context
What this study did
The authors looked at every study that compared DSM-IV-TR and DSM-5 autism rules. They added five more years of data to their own 2014 review. The final pool covered kids and adults tested in clinics, schools, and research labs.
They counted how many people lost the ASD label when the new rules were applied.
What they found
About one in five people who had an ASD diagnosis under the old rules no longer qualified under DSM-5. Only three out of ten of those who lost ASD could switch to Social Communication Disorder. The drop was smaller than the 2014 review had first shown.
How this fits with other research
Whitehouse et al. (2014) is the earlier version of this paper. It predicted a bigger one-third drop. The new data show the real-world shrink is milder, so the 2020 paper updates and partly replaces the 2014 warning.
Yaylaci et al. (2017) ran a single-clinic study and saw almost the same one-fifth drop. The close match gives confidence that the meta-analysis is not just a math quirk.
Maddox et al. (2015) seems to disagree. They say DSM-5 rules are psychometrically better and should be trusted. The clash is only surface-deep: B et al. looked at test quality, while M et al. counted how many kids get left out. Both can be true—better rules can still shrink the pool.
Why it matters
If you reassess a child who already carries an ASD diagnosis, be ready for the label to disappear. Keep solid baseline data and plan alternate goals under Social Communication Disorder so services do not stop cold. Document severity levels; they help justify continued ABA hours if the diagnosis tightens again.
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02At a glance
03Original abstract
We conducted a 5-year follow-up systematic review and meta-analysis to determine change in frequency of autism spectrum disorder (ASD) diagnosis since diagnostic and statistical manual 5 (DSM-5) publication and explore the impact of Social Communication Disorder (SCD). For 33 included studies, use of DSM-5 criteria suggests decreases in diagnosis for ASD [20.8% (16.0-26.7), p < 0.001], DSM-IV-TR Autistic Disorder [10.1% (6.2-16.0), p < 0.001], and Asperger's [23.3% (12.9-38.5), p = 0.001]; pervasive developmental disorder-not otherwise specified decrease was not significant [46.1% (34.6-58.0), p = 0.52]. Less than one-third [28.8% (13.9-50.5), p = 0.06] of individuals diagnosed with DSM-IV-TR but not DSM-5 ASD would qualify for SCD. Findings suggest smaller decreases in ASD diagnoses compared to earlier reviews. Future research is needed as concerns remain for impaired individuals without a diagnosis.
Journal of autism and developmental disorders, 2020 · doi:10.1007/s10803-019-03967-5