Assessment & Research

Fragile-X and Down's syndrome: are there syndrome-specific cognitive profiles at low IQ levels?

Simon et al. (1995) · Journal of intellectual disability research : JIDR 1995
★ The Verdict

Below IQ 40, fragile-X and Down learners score the same—plan lessons by ability, not label.

✓ Read this if BCBAs writing goals for kids with Down syndrome or fragile-X in school or clinic.
✗ Skip if Practitioners serving only moderate-IQ or ASD clients.

01Research in Context

01

What this study did

Finney et al. (1995) compared kids with fragile-X and Down syndrome who all had very low IQs. They wanted to know if each syndrome has its own special thinking profile. The team gave the same set of IQ and memory tests to both groups.

02

What they found

When IQ is below 40, the two groups looked the same on every test. The kids’ scores lined up by IQ level, not by syndrome label. Genetic cause did not shape the profile—ability level did.

03

How this fits with other research

Wishart (1993) had already shown that Down kids lose skills and learn in fits and starts. W et al. add that this rocky path looks just like the fragile-X path when IQ is very low. Jänsch et al. (2014) later proved that facial features fool observers; real test scores, not looks, predict ability. Amore et al. (2011) seem to disagree—they found Down preschoolers imitate better than they talk. The key difference: M et al. studied single skills, while W et al. looked at the whole IQ profile. Taken together, the papers say: pick goals from test data, not from the syndrome name.

04

Why it matters

Stop writing separate Down or fragile-X programs for very low-IQ learners. Use the child’s tested mental age to set language, play, and self-care targets. One lesson plan fits both groups when IQ is under 40.

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Open the most recent IQ report and write today’s objective from the mental-age column, not the diagnosis line.

02At a glance

Intervention
not applicable
Design
other
Population
down syndrome, intellectual disability
Finding
null

03Original abstract

Individuals with either fragile-X syndrome or Down's syndrome with IQ scores less than 40 were assessed on the Down Syndrome Mental Status Exam. The results of the testing were examined for syndrome-specific cognitive profiles. No evidence for syndrome-specific cognitive profiles were found. These same individuals were then classified as high or low IQ, and each group was examined for IQ-level-specific profiles. Unique IQ level cognitive profiles were found. Classifying the individuals with regard to aetiology obscured IQ-level-specific strengths and weaknesses. Researchers and developers of curricula are cautioned against generalizing cognitive profiles to all IQ levels of a specific genetic syndrome.

Journal of intellectual disability research : JIDR, 1995 · doi:10.1111/j.1365-2788.1995.tb00524.x