Assessment & Research

Exposure to life events as a risk factor for psychological problems in adults with intellectual disabilities: a longitudinal design.

Hulbert-Williams et al. (2014) · Journal of intellectual disability research : JIDR 2014
★ The Verdict

Negative life events forecast later psychological distress in adults with ID—track them like vital signs.

✓ Read this if BCBAs doing adult services, day programs, or residential settings.
✗ Skip if Clinicians who work only with young children or ASD without co-occurring ID.

01Research in Context

01

What this study did

Koegel et al. (2014) tracked 68 adults with intellectual disability for two years. They counted negative life events like bereavement, job loss, or illness. Then they measured later psychological problems while holding baseline symptoms steady.

02

What they found

More bad events meant more later distress. The link stayed strong even after the team wiped out early symptoms. Life events added new risk on top of existing troubles.

03

How this fits with other research

Kittler et al. (2004) and Dagnan et al. (2005) saw the same pattern in cross-sectional surveys. The 2014 study moves the ball forward by showing the damage unfolds over time, not just at one snapshot.

Byiers et al. (2025) recently repeated the design in Down-syndrome adults and added childhood trauma as an extra amplifier. Their data line up with L et al.: adult stressors worsen mental health, but early ACEs pour fuel on the fire.

Perez et al. (2015) looked at young adults and found life events slow thinking speed. That result seems different—cognition instead of mood—but it fits the same theme: stress piles up and hurts functioning.

04

Why it matters

Screen for life events at intake and every six-month review. A simple checklist—death, move, job loss, illness—flags clients who need extra coping skills or counseling. Pair the screen with caregiver reports; people with ID may under-report threat. Acting early can stop a spiral of new symptoms.

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Add a three-item life-events checklist to your intake form and review it every six months.

02At a glance

Intervention
not applicable
Design
quasi experimental
Sample size
68
Population
intellectual disability
Finding
positive
Magnitude
medium

03Original abstract

BACKGROUND: Several cross-sectional studies have shown an association between exposure to life events and psychological problems in adults with intellectual disability (ID). To establish life events as a risk factor, prospective designs are needed. METHODS: Support staff informants provided data on the psychological problems of 68 adults with ID and their recent exposure to life events. Using data collected on the same sample 3.5 to 4 years earlier, prospective analysis of the relationships between life events exposure and psychological problems over time was explored. RESULTS: Hierarchical linear regression analyses demonstrated a contribution of life events to the prediction of later psychological problems after controlling for earlier psychological problems. Exploratory analyses showed that the relationship between life events and psychological problems might be unidirectional, and non-spurious; remaining present once the impact of other correlates of psychological problems was controlled. CONCLUSIONS: These data offer support for the status of life events (with a negative valence) as a risk factor for psychological problems in adults with ID. To establish life events as a causal risk factor, research is needed to examine the mechanisms via which life events have their impact on psychological well-being.

Journal of intellectual disability research : JIDR, 2014 · doi:10.1111/jir.12050