Assessment & Research

Emergence of autism spectrum disorder in children from simplex families: relations to parental perceptions of etiology.

Goin-Kochel et al. (2015) · Journal of autism and developmental disorders 2015
★ The Verdict

Parents who remember sudden skill loss are more likely to blame vaccines—ask about onset story at intake.

✓ Read this if BCBAs doing intake assessments with new families.
✗ Skip if Clinicians only serving adults or non-autistic clients.

01Research in Context

01

What this study did

The team sent a short survey to 500 parents who each had one child with autism.

They asked two things: how did the autism first show up, and what do you think caused it?

Parents picked either slow early signs or sudden loss of words and skills called regression.

02

What they found

Kids who lost skills suddenly made up one third of the group.

Parents in that group named vaccines or toxins as the cause twice as often as other parents.

The belief stayed strong even when kids had no medical link to shots.

03

How this fits with other research

Austin et al. (2015) asked the same questions to the general public and daycare staff.

They also found the vaccine myth alive in one out of ten people.

The two surveys do not clash; P et al. zooms in on parents who saw regression, while E et al. shows the myth is common everywhere.

Together they say the vaccine story is still out there, so you must ask each family what they believe.

04

Why it matters

If you know a parent links shots to regression you can start with empathy, share clear data, and keep the therapy alliance strong.

Add one question about onset type and cause to your intake form this week.

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Add a checkbox for ‘regression onset’ and open-ended ‘believed cause’ on your parent interview sheet.

02At a glance

Intervention
not applicable
Design
survey
Population
autism spectrum disorder
Finding
not reported

03Original abstract

Current research describes a four-category scheme of Autism Spectrum Disorder (ASD) onset: early, regressive, plateau, delay + regression. To replicate prevalence of different onset types, ASD onset (per the Autism Diagnostic Interview--Revised) was examined in a large North American sample; for a subset, parents' causal beliefs were ascertained via the Revised Illness Perception Questionnaire to examine potential associations with ASD-onset types. Onset rates were similar across samples, with a slightly higher proportion of children in the subsample categorized with regression. Top-rated causes of ASD were genetics, brain structure, will of God, toxins in vaccines, and environmental pollution. Parents reporting regression more often believed that toxins in vaccines caused ASD. Influences on treatment selection and broader public-health ramifications are discussed.

Journal of autism and developmental disorders, 2015 · doi:10.1007/s10803-014-2310-8