Changes in social impairment for people with intellectual disabilities: a follow-up of the Camberwell cohort.
Severe social impairment in ID/ASD is largely locked in after adolescence, so intervene early and keep supports in place.
01Research in Context
What this study did
Julie and her team tracked the adults with severe intellectual disability or autism. They used the Camberwell cohort, a group first counted in the 1980s.
Ten years later the researchers scored each person again on social skills. They asked: did anyone move from ‘aloof’ to ‘social’ or the other way around?
What they found
Only 7 out of 245 people changed social groups. The rest stayed exactly where they were.
Among the most isolated, two-thirds became even more aloof. Social skill level was frozen in place.
How this fits with other research
Friman (2014) followed students with mild ID after graduation and saw the same freeze in work, school, and daily-living skills. Together the papers show stability is not just a ‘severe ID’ issue; it hits the whole spectrum.
Matson et al. (2009) pooled 23 studies and found adults with ID have tiny social networks and little paid work. Julie’s a large share shift explains why those numbers stay flat year after year.
Chung et al. (2019) watched high-schoolers with IDD in inclusive classes. Even there the students talked to peers only a large share of the time. The new data say this low rate is unlikely to budge without help.
Why it matters
If social skills rarely change on their own, waiting for ‘maturity’ wastes time. Start teaching interaction early and keep the program running. Use peer-mediated groups, structured leisure, and job coaching across the lifespan. Plan long-term supports instead of short-term fixes.
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02At a glance
03Original abstract
The skills and social impairments of a total population of children with severe intellectual disabilities and/or autism from Camberwell, South London (Wing and Gould, 1978 and 1979), were assessed using the Handicaps, Behaviours and Skills schedule, and they were reassessed when they were adolescents and young adults (Shah, 1986). Changes in social impairment over time are presented here. As Shah (1986) had found with a smaller sample, social impairment remained relatively stable over time: on a simple "socially impaired" versus "sociable" dichotomous grouping, 93% did not change social group. Within the socially impaired group, there was a significant increase in impairment over time (i.e., people who were passive at Time 1, were aloof at Time 2). Implications of these results and predictions for a further follow-up study are discussed.
Journal of autism and developmental disorders, 2002 · doi:10.1023/a:1015401814041