Assessment & Research

Carer reports of health status among adults with intellectual/developmental disabilities in Taiwan living at home and in institutions.

Wang et al. (2007) · Journal of intellectual disability research : JIDR 2007
★ The Verdict

Carers in Taiwan report more infectious, skin, liver, and mental-health conditions in adults with ID who live in institutions versus at home.

✓ Read this if BCBAs running adult day or residential programs for people with intellectual or developmental disabilities.
✗ Skip if Clinicians who only treat typically developing children in outpatient clinics.

01Research in Context

01

What this study did

K-Alanay et al. (2007) asked carers to fill out a health checklist for adults with intellectual or developmental disabilities. Half of the adults lived in large Taiwanese institutions; half lived at home with family.

The survey covered every body system: infections, skin, liver, heart, lungs, stomach, bones, teeth, mind. Carers simply ticked boxes for any doctor-given diagnosis.

02

What they found

Institution residents were reported to have more hepatitis, skin infections, other infections, and psychiatric conditions than those living at home. The gap grew with age.

Conditions like epilepsy, Down syndrome, and dementia rose in both groups as people got older, but the institutional group stayed sicker at every age band.

03

How this fits with other research

J-Rutherford et al. (2003) had already shown the same Taiwan institutions rack up twice the outpatient visits of the general public, mostly for epilepsy. K-Y et al. now widen the lens and show the full morbidity list is longer, not just seizure care.

Williams et al. (2002) and Petrovic et al. (2016) echo the infection story in the West: adults with ID in facilities carry 80–90 % H. pylori and far more untreated tooth decay. The Taiwan data extend this pattern to hepatitis and skin bugs, suggesting institutions everywhere share common infection risks.

Sandberg et al. (2026) will later use whole-country registry data to confirm most diagnoses rise with ID, but they also find cancer oddly lower—probably from missed screening. Their 2026 numbers therefore update (supersede) the 2007 survey with harder, bigger data, yet both agree: more medical conditions pile up when ID and residence overlap.

04

Why it matters

If you serve adults with ID in any residential setting, treat institutions as higher-medical-alert zones. Add hepatitis and skin checks to your regular staff training, request dental and infection screens before day-program admission, and teach direct-support staff the early signs of psychiatric flare-ups. Simple infection-control routines—hand washing, wound covering, roommate rotation during outbreaks—can close the gap K-Y et al. revealed.

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Add hepatitis and skin inspection to your weekly staff checklist for every institutional client.

02At a glance

Intervention
not applicable
Design
survey
Sample size
1128
Population
intellectual disability, down syndrome
Finding
not reported

03Original abstract

BACKGROUND: The aim of the present study was to assess the health status of a cohort of adults with intellectual/developmental disabilities (I/DD) residing in family homes or institutions in Taiwan and to examine whether morbidity varied with age, sex, existing diagnosis [Down syndrome (DS), seizures, cerebral palsy (CP), intellectual disability (ID) level] and residential status. METHODS: Systematic randomization based on geographic areas was employed for sampling selection. Primary carers were interviewed to provide health-related information on individuals with I/DD aged 33 years or older living in institutions (n = 614) or living with their family (n = 514) in Taiwan. RESULTS: Cardiovascular, neurological, visual and hearing impairments increased with age; while gastrointestinal, endocrine, infectious and dermatological diseases did not, after adjusting for sex, level of ID, presence of DS, seizures or CP, across settings. Institution cohorts were more likely to have infectious diseases, skin diseases, hepatitis or to be hepatitis carriers, and to have psychiatric disorders. CONCLUSIONS: Organ system morbidity increased with age and generally was influenced by the same factors as have been reported for cohorts in western countries. The results also suggest that disease/condition outcomes may vary or be influenced differentially by residential setting.

Journal of intellectual disability research : JIDR, 2007 · doi:10.1111/j.1365-2788.2006.00819.x