Assessment & Research

Cardiac diseases in people with intellectual disability.

van den Akker et al. (2006) · Journal of intellectual disability research : JIDR 2006
★ The Verdict

Expect heart disease in about 1 in 7 adults with ID you serve, and remember it usually travels with other chronic illnesses.

✓ Read this if BCBAs and RBTs working with adults or older teens with intellectual disability in residential or day-program settings.
✗ Skip if Practitioners serving only young children or clients with no ID diagnosis.

01Research in Context

01

What this study did

Galuska et al. (2006) looked at every adult living in 13 Dutch residential homes for people with intellectual disability. They read each person's medical file and noted any doctor-diagnosed heart problem. The final count was 436 adults.

02

What they found

About 1 in 7 residents had heart disease. Women, older adults, and people with mild or moderate ID showed the highest rates. The number rose with age, just like in the general public.

03

How this fits with other research

McCarron et al. (2013) and Hermans et al. (2014) later asked the same big question but counted all chronic diseases, not just the heart. They found even heavier burdens: 71% of adults over 40 had two or more illnesses, and the share jumped to 80% after age 50. These studies extend the 2006 finding by showing the heart data sit inside a wider pattern of multimorbidity.

Bao et al. (2017) zoomed in on adults with severe or profound ID plus motor disability. Their review still lists heart trouble, yet epilepsy (70%) tops the chart. The narrower group keeps cardiac risk, but brain and movement problems overshadow it.

McConkey et al. (2010) add a warning: people with ID are hospitalized for preventable conditions at six times the usual rate. Together the papers tell one story—cardiac disease is common, but it is only one piece of heavy, and often avoidable, medical need.

04

Why it matters

When you support an adult with ID, plan for the heart as well as the head. Build cardiac checks into annual assessments, especially for women and clients over 40. Use the high multimorbidity rates from later studies to justify full physicals, medication reviews, and fall-risk screens. Flag any chest pain, fatigue, or swelling early; primary-care gaps already send too many people to the hospital. A quick nurse visit today can stop an ambulance tomorrow.

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Add one question about chest pain or shortness of breath to your weekly health check, and alert the nurse if the client is female or over 40.

02At a glance

Intervention
not applicable
Design
other
Sample size
436
Population
intellectual disability
Finding
not reported

03Original abstract

BACKGROUND: In people with ID there is more morbidity than in the general population, including cardiac diseases. Dutch figures on this subject are scarce. METHODS: Descriptive study of the prevalence of cardiac diseases in 436 residential clients in Echt, the Netherlands, and comparisons between men and women, age groups, and level and aetiology of ID, were carried out. RESULTS: It was found that the total prevalence of cardiac diseases was 14%, with a higher prevalence among women, the elderly, and people with mild/moderate ID. CONCLUSIONS: The prevalence of cardiac diseases in residential clients is substantial. With the increasing number of ageing people with ID and people with ID living more independently in community-integrated residences, it is expected that the morbidity and mortality from cardiac diseases will increase further.

Journal of intellectual disability research : JIDR, 2006 · doi:10.1111/j.1365-2788.2006.00797.x