Assessment & Research

Brief report: prevalence of autism spectrum conditions in children aged 5-11 years in Cambridgeshire, UK.

Scott et al. (2002) · Autism : the international journal of research and practice 2002
★ The Verdict

One in 167 Cambridgeshire primary pupils had autism in 2002, a baseline that today looks low because wider criteria and sharper eyes now find far more cases.

✓ Read this if BCBAs who write screening policies or train school staff.
✗ Skip if Clinicians looking for intervention tactics—this paper counts, it does not treat.

01Research in Context

01

What this study did

A small UK team visited every primary school in Cambridgeshire. They looked for autism spectrum conditions in children aged 5-11. Teachers and parents filled out short checklists. Kids who scored high were seen by a clinician.

The survey covered mainstream and special schools. No child was given therapy; the goal was simply to count.

02

What they found

One child in every 167 had an autism spectrum condition. Boys outnumbered girls 4 to 1 overall. In regular classrooms the boy-to-girl ratio jumped to 8 to 1. Special schools showed a much higher rate than mainstream ones.

03

How this fits with other research

The 2002 Cambridgeshire number—57 per 10 000—felt high at the time. Fombonne (2003) pooled 32 earlier studies and placed typical prevalence at 30–60 per 10 000, so the new count sat at the top of that band.

Two decades later the picture has changed. Zeidan et al. (2022) reviewed 202 surveys and now report a global median of 100 per 10 000. Wong et al. (2025) used the same two-step school method in Hong Kong and found 257 per 10 000. The rise is not an epidemic; broader rules and better awareness catch more cases.

May et al. (2020) tracked Australian 12-year-olds born just two years after the Cambridgeshire kids and saw 436 per 10 000. Together these papers show a steady climb, not a sudden spike.

04

Why it matters

When you screen a new caseload, expect far more diagnoses than early textbooks suggest. Use current prevalence (about 1 %) when you justify staffing to schools or insurers. Remember the hidden girls: the 8-to-1 ratio in mainstream classes means many females are still missed—so lower your checklist cut-off for them.

Free CEUs

Want CEUs on This Topic?

The ABA Clubhouse has 60+ free CEUs — live every Wednesday. Ethics, supervision & clinical topics.

Join Free →
→ Action — try this Monday

Drop your universal screening score by one point for girls; the 2002 data show they surface only when barriers are lower.

02At a glance

Intervention
not applicable
Design
other
Population
autism spectrum disorder
Finding
not reported

03Original abstract

The study aimed to establish prevalence of the broader autistic spectrum, including Asperger syndrome, in 5- to 11-year-olds in Cambridgeshire, UK. Cases of diagnosed autism spectrum condition (ASC) in children who were in Cambridgeshire schools and aged between 5 and 11 years on 31 December 1999 were sought using public records, screening instruments, educational psychology and special educational needs coordinator (SENCO) records. We report a prevalence of ASC in the age group 5-11 years of almost 0.6 percent (57 in 10,000). This is 11 times higher than the rate of classic autism but in line with other recent national and international rates for the broader spectrum. In the responding mainstream schools the prevalence was 0.33 percent. In the responding special school population it was 12.5 percent. The overall sex ratio of the children with ASC replicated findings for classical autism of 4:1 (M:F), but in those children being educated in mainstream schools the sex ratio was 8:1 (M:F).

Autism : the international journal of research and practice, 2002 · doi:10.1177/1362361302006003002