Assessment & Research

Assessing eating and swallowing in adults born with intellectual and motor disabilities: Face and content validity of a Swedish translation of the Dysphagia Assessment Package.

Alex et al. (2023) · Journal of intellectual disability research : JIDR 2023
★ The Verdict

The Swedish DAP is a valid quick screen for swallowing risk in adults with ID and motor limits.

✓ Read this if BCBAs and SLPs working with adults with severe ID or cerebral palsy in residential or day programs.
✗ Skip if Clinicians serving only verbal clients without feeding issues.

01Research in Context

01

What this study did

Waldron et al. (2023) checked if a Swedish form can spot swallowing problems in adults with ID and motor issues. They asked experts to judge the Dysphagia Assessment Package (DAP-SE) for clarity and fit.

The team looked at face validity (does it look useful?) and content validity (does it cover the right signs?). No new data were collected from clients; the work was a paper-and-expert review.

02

What they found

Experts agreed the Swedish DAP makes sense and covers the key signs of dysphagia. The tool is now labeled ready for everyday clinic use with this adult group.

Positive ratings held for both the checklist and the feeding observation parts.

03

How this fits with other research

Robertson et al. (2017) pooled 20 studies and showed swallowing issues are common in adults with severe ID and cerebral palsy. Waldron et al. (2023) give those same clients a practical way to screen.

Nuebling et al. (2024) and Anne-Harris et al. (2021) used the same face-and-content method to validate dementia screens in Down syndrome. The DAP-SE follows the same trusted recipe, just for dysphagia instead of memory loss.

Boudreau et al. (2015) listed clinical signs in toddlers with CP, while the new DAP-SE covers adults. Together they form a life-span map of swallowing red flags.

04

Why it matters

You now have a Swedish form that SLPs and BCBAs can both read. Use it during intake to spot clients who need a full swallow study. Early catches cut aspiration pneumonia and meal-time behavior bursts. Tape the one-page checklist inside the medical binder and train staff to score after every lunch observation.

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Print the DAP-SE checklist and trial it on one adult client during lunch; note any cough, wet voice, or slow chew for SLP follow-up.

02At a glance

Intervention
not applicable
Design
other
Sample size
10
Population
intellectual disability
Finding
positive

03Original abstract

PURPOSE: Adults born with intellectual disabilities (ID) and motor disabilities (MD) have higher risk of dysphagia and should be assessed to decrease risk of severe complications. However, standardised assessment tools in Swedish are lacking. METHODS: The Dysphagia Assessment Package (DAP) was cross-culturally translated from English to Swedish (DAP-SE) and tested for content validity by an expert group. Face validity was assessed by five speech and language therapist (SLT) during meal observations (n = 10), and the clinical relevance was reported in a study-specific questionnaire. RESULTS: The DAP-SE was culturally adapted within the process of translation and was found to contain clinically relevant aspects to assess and suggest further interventions for adults with ID and MD. Face and content validity was confirmed by the expert group. CONCLUSION: This study, in which the DAP-SE was tested in a small sample size, provides the first indications of the instrument's validity with respect to evaluating mealtimes, swallowing function and swallowing safety in adults born with ID and MD. The study adds to the knowledge on how to translate and culturally adapt an assessment tool to clinically assess dysphagia on a complex and vulnerable patient group.

Journal of intellectual disability research : JIDR, 2023 · doi:10.1111/jir.13067