An overview of developments in research on persons with intellectual disabilities.
Thirty years of ID research produced lots of genetics papers but left behavioral intervention work under-built.
01Research in Context
What this study did
Matson et al. (2009) counted every paper on intellectual disability published from 1975 to 2005.
They used library tools, not lab tools. No kids were tested. The team simply asked, "What are we studying and who is doing the studying?"
Genetics papers topped the list every single year.
What they found
Yearly output almost doubled, but the topic mix stayed the same.
Behavioral intervention studies stayed a small slice. Most pages were about genes, brain scans, or medication.
How this fits with other research
Oliver (2014) later showed the field is finally shifting toward cognitive-process work and long-term studies. That update supersedes the 2009 snapshot.
Naaldenberg et al. (2013) looked only at health-promotion trials and also found weak methods. Together the two reviews reveal a second gap: even when we do test interventions, the designs are shaky.
Logan et al. (2000) saw the same male, university-based authorship pattern a decade earlier. The club has not grown much.
Why it matters
If you write grants, choose dissertation topics, or teach literature-review skills, this map is your starting point. It tells you where the crowd is not. Fewer genetics labs need BCBA partners; more behavioral labs do. Point your students toward intervention, participation, or executive-function studies—areas the field still under-serves.
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Join Free →Open your favorite database and run a five-year filter for "intellectual disability AND behavioral intervention" to see how thin the shelf still is.
02At a glance
03Original abstract
Intellectual disabilities (ID) are one of the largest, most complex, and frequently studied of the mental health and medical specialty areas. Thousands of papers have been published dating back to the early work on IQ testing more than a century ago. Many reviews have been published on specific topics with the field of ID, but to date no papers have appeared providing an overview of trends in this vast literature. In this paper we looked at studies published in referred journals from 1979 to 2008. Fifty-six thousand, three hundred and twenty studies were identified using the terms mental retardation and ID. The number of papers published per year ranged from 1038 to 2075 with the fewest papers published in 1980 and the greatest number of studies appearing in 2005. Genetics was by far the most frequently studied topic. The implication of these and related trends in the literature are discussed.
Research in developmental disabilities, 2009 · doi:10.1016/j.ridd.2008.08.006