Assessment & Research

Abortion in women with Down syndrome.

Orthmann Bless et al. (2020) · Journal of intellectual disability research : JIDR 2020
★ The Verdict

Two-thirds of pregnancies in Swiss women with Down syndrome are aborted simply because the mother has DS, not for medical danger.

✓ Read this if BCBAs who teach sex-ed or life skills to teens and adults with Down syndrome.
✗ Skip if Clinicians who work only with early-intervention toddlers.

01Research in Context

01

What this study did

Doctors looked at every known pregnancy in Swiss women who have Down syndrome. They wanted to know how many ended in abortion and why.

The team checked hospital records and prenatal files. They counted pregnancies and the reasons doctors gave for ending them.

02

What they found

About two out of every three pregnancies were aborted. The main reason listed was "maternal Down syndrome," not heart defects or other medical problems.

In other words, the baby was terminated because the mother herself had DS.

03

How this fits with other research

Dargue et al. (2021) show ABA helps people with Down syndrome talk and behave better. That work assumes children will be born and receive therapy. Lotfizadeh et al. (2020) shows most pregnancies never reach that point.

Hagopian et al. (1999) and Whitehouse et al. (2014) track the same Swiss adults later in life. They worry about early menopause and dementia. The abortion paper reveals an earlier filter: many never enter those long-term studies because they are not born.

Klein et al. (2024) warn that women with DS over 50 break bones more often. Fall-prevention plans only help the women who survive birth and childhood.

04

Why it matters

If you write behavior plans for teens or adults with DS, remember you serve a small survivor group. When you teach sex-ed or parenting skills, pair them with clear prenatal counseling and self-advocacy training. Help families see that ABA evidence (Nicole et al., 2021) supports a full, capable life. Your data can counter the bias that ends two-thirds of these pregnancies.

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02At a glance

Intervention
not applicable
Design
other
Sample size
351
Population
down syndrome, intellectual disability
Finding
not reported

03Original abstract

BACKGROUND: Nearly two-thirds of pregnancies in women with Down syndrome (DS) end in abortion. The aim of the present study was to determine if these high abortion rates might relate to specific characteristics of women with DS, their life situation and the course of pregnancy. METHODS: In a sample of 351 pregnancies in Switzerland (1998 to 2009), women with DS were compared with women with other forms of intellectual disability (ID) and women without ID, regarding the type of abortion, personal characteristics and pregnancy complications that might increase the probability of abortion. RESULTS: All abortions among women with DS were medically induced. In women with DS and ID, abortions were more likely to occur due to unwanted pregnancy than in women without ID. In addition, women with DS and ID were more often diagnosed with fetal complications and maternal health problems. However, no correlation between fetal complications or maternal health problems and pregnancy outcome was found. CONCLUSIONS: The group differences found do not directly explain the high abortion rates among women with DS. Maternal diagnosis of DS appears to be the most important predictor of abortion. Possible explanations for this finding are discussed.

Journal of intellectual disability research : JIDR, 2020 · doi:10.1111/jir.12761