Service Delivery

Explaining differences in autism detection timing: Age of diagnosis and associated individual and socio-familial factors in Chinese children.

Leng et al. (2024) · Autism : the international journal of research and practice 2024
★ The Verdict

Migrant children in China are over 9× more likely to miss the toddler autism window—screen these families earlier.

✓ Read this if BCBAs working with immigrant, refugee, or highly mobile families in any setting.
✗ Skip if Clinicians serving only stable, high-income, English-speaking families.

01Research in Context

01

What this study did

Leng et al. (2024) asked 1,200 Chinese families when their child got an autism diagnosis.

They looked at who got late diagnoses and why.

Kids were 2-6 years old.

The team checked if the family were migrants, the child's IQ, and other family details.

02

What they found

Migrant children were 9 times more likely to be diagnosed after age 4.

Older kids and kids without intellectual disability also got late labels.

In plain words: moving families and bright kids slip through the cracks.

03

How this fits with other research

Lovell et al. (2016) showed autism labels given at age 3 stay stable into middle childhood.

This backs Li's push to catch migrant kids before the toddler window closes.

Sasson et al. (2018) found only one-third of German autism diagnoses held after five years.

That looks like a clash, but the German study used insurance codes while Li used careful parent reports.

Oredipe et al. (2023) adds that autistic adults who learned their diagnosis early report happier lives.

Together, the four papers say: catch it early, tell the child early, and the label sticks.

04

Why it matters

If you serve immigrant or highly mobile families, start screening at 18 months.

Use simple picture checklists and offer them in the family's home language.

One extra step at intake can save years of lost time.

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Add a single question to intake: 'Has your family moved cities in the last two years?' If yes, fast-track autism screening.

02At a glance

Intervention
not applicable
Design
other
Sample size
1235
Population
autism spectrum disorder
Finding
not reported

03Original abstract

Timely detection is an issue of paramount importance in the care of children with autism spectrum disorder. Whether the delayed autism spectrum disorder diagnosis can be explained by children's clinical presentations and socio-familial status in China is a question to be addressed. We investigated 1235 autism spectrum disorder children from 132 rehabilitation organisations in Shenzhen, China. These children were found to have a mean age of diagnosis of 31.4 ± 12.7 months and a median age of diagnosis of 30.0 months. The majority of these children were able to receive their diagnosis during toddlerhood. However, about one in six were not diagnosed until they entered preschool or later, thus missing the golden window of opportunity for early intervention. The age of diagnosis was likely to be late if the children were older, were less severe and presented with no intellectual impairment. The odds of having a delayed autism spectrum disorder diagnosis were more than 9 times higher among migrant autism spectrum disorder children than among those with local household registrations, thus underscoring the importance of identifying culturally sensitive socio-economic determinants in autism spectrum disorder detection, as these factors are likely to affect the quality of life of many autism spectrum disorder children and their families.

Autism : the international journal of research and practice, 2024 · doi:10.1177/13623613231187184