Assessment & Research

Parent-reported early symptoms of autism spectrum disorder in children without intellectual disability who were diagnosed at school age.

Goodwin et al. (2019) · Autism : the international journal of research and practice 2019
★ The Verdict

School-age autism diagnoses still trace back to early social red flags—so ask parents about toddler social play, not just repetitive behaviors.

✓ Read this if BCBAs doing intake assessments in clinics or schools.
✗ Skip if Practitioners who only treat infants already flagged by pediatricians.

01Research in Context

01

What this study did

Goodwin et al. (2019) asked parents to look back and list early signs they saw before their child’s autism diagnosis. Some kids were found early. Others were not flagged until grade school. The team wanted to know if the late-found group had truly looked different as toddlers.

They compared parent memories of the two groups. All children had average IQ. No child had an intellectual disability.

02

What they found

The late-diagnosed children had almost the same number of early red flags. Social slips were the most common clue. Repetitive play or odd interests were rarely the first thing parents noticed.

The gap between the groups was small. Subtle social misses, not big rituals, were the main historical hint.

03

How this fits with other research

Pilgrim et al. (2000) saw the opposite pattern. In their infant sample, later-autism kids showed large social gaps on 16 of 19 items. Anthony’s smaller, school-age group shows the same trend but in miniature. The difference is magnitude, not direction.

Lemcke et al. (2013) also found weak, scatter-shot early signs at 6 and 18 months. Their null result lines up with Anthony’s small effect. Together they warn that toddler screens alone can miss subtle presentations.

Parikh et al. (2018) add why diagnosis can slide: kids with known language delays and higher family income get flagged almost two years sooner. Anthony shows the missed kids did have clues—just quiet social ones—so asking the right parent questions matters as much as checklists.

04

Why it matters

If you wait for clear repetitive behavior, you may wait too long. Ask parents about early turn-taking, eye contact, and joint attention even when language looks fine. A quick parent interview can surface the soft social gaps this study highlights, speeding referral and saving years of lost intervention time.

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Add two parent questions: “Did your child show things to you just to share interest?” and “Did he look back at you when unsure?” A no on either is a soft social flag worth follow-up.

02At a glance

Intervention
not applicable
Design
case control
Sample size
48
Population
autism spectrum disorder
Finding
weakly positive
Magnitude
small

03Original abstract

Despite efforts to detect autism spectrum disorder during toddlerhood, many children with autism spectrum disorder remain undiagnosed until school age. To identify characteristics of children whose autism spectrum disorder might not be diagnosed during toddlerhood, this study used archived Autism Diagnostic Interview-Revised records to examine the historical presentation of autism spectrum disorder symptoms in 48 school-age children with autism spectrum disorder. Children diagnosed after starting school (Late-Diagnosed; n = 24) were compared to age-matched children diagnosed before school age (Early-Diagnosed; n = 24). Symptom presentation was similar between groups, with the Late-Diagnosed group exhibiting only marginally fewer symptoms historically. The most commonly reported historical symptoms were negative symptoms, namely, deficits in social behaviors. Positive symptoms, such as unusual preoccupations, rituals, and mannerisms, were less commonly reported. These findings may aid earlier identification of autism spectrum disorder in children who would likely be diagnosed at school age.

Autism : the international journal of research and practice, 2019 · doi:10.1177/1362361318777243