Service Delivery

Family and Practitioner Perspectives on Prenatal Early Intervention.

Keilty et al. (2020) · Intellectual and developmental disabilities 2020
★ The Verdict

Stakeholders agree that EI should start before birth, but families want full-scope help while practitioners want shared roles with medical teams.

✓ Read this if BCBAs who work in Part C intake or hospital-to-home transition programs.
✗ Skip if Clinicians who only serve school-age clients.

01Research in Context

01

What this study did

Keilty et al. (2020) asked two groups what they think about starting Early Intervention before a baby is born.

One group was families who already had a child with developmental delay. The other group was EI practitioners.

Everyone filled out a survey that listed possible prenatal goals. They rated how clear and how important each goal felt.

02

What they found

Both families and practitioners said the prenatal goals were clear and important.

Families wanted EI staff to help with every area: feeding, sleep, behavior, medical care.

Practitioners liked the idea too, but they wanted to share the work with doctors and nurses.

03

How this fits with other research

Mé lina et al. (2023) listened to parents tell the story of getting a diagnosis. Those parents want the same five things: easy access, smooth hand-offs, trustworthy info, flexible visits, and a warm provider. Bonnie’s families echo every point, just earlier in time.

Callanan et al. (2021) and Dempsey et al. (2009) show that family-centered help after birth lowers parent stress. Bonnie’s data say families are ready for that help even before birth.

Pickard et al. (2025) found that when Part C coaches stick to the model, parents use the strategies more, but warmth comes from extra tweaks. Bonnie’s practitioners already expect to team with medical staff—an early sign that shared roles may need to be built into any prenatal model.

04

Why it matters

You now have parent proof that prenatal EI is not a hard sell. Families want you at the table as soon as they hear “high risk.” Build a short prenatal packet that lists the same goal areas Bonnie used. Offer it during the last trimester OB visit. Tell families you will co-visit with the nurse so no one feels you are stepping on toes. Start small: one joint visit, one follow-up call. The survey says they will say yes.

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Add a one-page prenatal hand-off form to your referral packet that lists feeding, sleep, behavior, and medical goals—families already told Bonnie et al. these are the priorities they want you to cover.

02At a glance

Intervention
not applicable
Design
survey
Population
developmental delay
Finding
positive

03Original abstract

Increasingly, families know prenatally of certain diagnoses with a high probability of developmental delays. These diagnoses could result in eligibility for Part C early intervention (EI) postnatally. Although prenatal developmental interventions (e.g., Early Head Start, Nurse Family Partnership) are common for families with environmental risks, no research has explored the potential of prenatal EI for those families with EI eligible diagnoses. This online survey research explored family and practitioner perspectives of potential prenatal EI and project-identified prenatal outcomes (i.e., health and well-being, parent-child interactions, parenting to family culture, and navigating systems and supports). Overall, both samples reported the prenatal outcomes were clear and important prenatally. Families preferred EI practitioners help with all outcomes. Practitioners preferred to take the lead on some outcomes (e.g., knowledge of and comfort with EI services, intention of EI), whereas the medical community took the lead on others. Findings support the need for further research on the potential of prenatal EI and resulted in implications for current postnatal EI.

Intellectual and developmental disabilities, 2020 · doi:10.1352/1934-9556-58.1.1