The Equity Agenda in Intellectual and Developmental Disabilities Research.
IDD research must name and challenge racialization and whiteness to serve all clients fairly.
01Research in Context
What this study did
Johnson (2023) wrote a think-piece, not an experiment. The paper asks the IDD research world to place racial justice at the center of every study.
It names two hidden forces: racialization and whiteness. The author argues we must study how these forces shape services, data, and funding choices.
What they found
There is no data set or p-value. The finding is a warning: if we keep treating equity as a side note, IDD science will keep serving some groups far better than others.
The paper ends with a call for critical praxis—constant reflection plus action—to break this cycle.
How this fits with other research
Emerson et al. (2023) and Zwiya et al. (2023) sound almost identical. All three 2023 papers shout the same message: move from white-dominant models to equity-led, community-engaged work.
Bogenschutz et al. (2024) picks up the baton and turns it into six concrete research goals for social inclusion, showing the equity agenda is already growing legs.
Hamama et al. (2021) looks like a contradiction at first. That paper urges the field to focus on precise terms and evidence-based practice, not race. Read side-by-side, the older paper shows where the field was; Robinson shows where it must go next. The two pieces are stages, not enemies.
Why it matters
As a BCBA you write goals, pick assessments, and train staff. Robinson says ask who is missing from your data and why. Check if your picture cards, parent forms, or reinforcers carry hidden cultural bias. Start small: add a community advisor with IDD to your next study team, or swap one assessment for a culturally-adapted version. These tiny moves push the whole field toward equity.
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02At a glance
03Original abstract
This commentary on Kover and Abbeduto (2023) underscores the critical importance of naming and framing toward an equity agenda in intellectual and developmental disabilities research. More specifically, I briefly outline (1) why racialization is an important anchor in IDD discourse; (2) whiteness as a necessary point of discussion; and (3) the adoption of critical inquiry and critical praxis.
American journal on intellectual and developmental disabilities, 2023 · doi:10.1352/1944-7558-128.5.379