Remembering Dr Li-Ching Lee, a pioneer of global autism research.
Dr Li-Ching Lee showed that humble, data-driven advocacy can build autism services where none existed.
01Research in Context
What this study did
Fombonne et al. (2022) wrote a memorial article. They honored Dr Li-Ching Lee. She spent her life studying autism around the world. The paper lists her big ideas and kind acts.
It is not a lab study. It is a story of her work in Asia, Africa, and Latin America. It shows how she used numbers to push for better services.
What they found
The main finding is a person, not a p-value. Dr Lee proved one doctor can change policy. She built autism centers in low-income countries. She trained local parents and scientists.
Her rule: listen first, act second. She told teams to count kids with autism, then fight for funds. Her work is still growing after her death.
How this fits with other research
Zamora et al. (2016) give the how-to. They showed Latino families join studies when you speak Spanish and meet in churches. Lee’s global push lines up with this local detail.
Tager-Flusberg et al. (2016) teach us to include kids who talk little. Lee wanted every child counted, not just the verbal ones. The two papers share the same big tent idea.
McComas et al. (2025) warn that ABA can hold quiet bias. Lee’s humility stance matches their call to audit ableist goals. Same mission, different words.
Catagnus et al. (2025) also wrote a tribute. They honor Dr Hughes Fong for DEI work. Reading both memorials side-by-side shows our field values heart-led leaders.
Why it matters
You can copy Lee’s first step today. Ask: ‘Who is missing from my data?’ Then walk into under-represented neighborhoods and listen. Use Irina’s parent-centered tricks, Tager-Flusberg’s desensitization tips, and McComas’s anti-ableist checklist. One humble BCBA can spark region-wide change, just like Lee did.
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02At a glance
03Original abstract
The field of global autism research lost a pioneer, champion, and innovator with the passing of Dr Li-Ching Lee in May 2021. Dr Lee served as the editor for a special issue in Autism on global autism research (2017, Volume 21, Issue 5) and her substantial impact on autism research and autistic individuals and their families in low- and middle-income countries warrants a place in this special issue. While a giant in the professional arena, her large impact on science is minor compared to the compassion, kindness, and love she brought to her family, friends, and her professional communities at Johns Hopkins, across institutions, her native Taiwan, and the areas in which she conducted her research. Dr Lee was immensely humble and intensely focused on harnessing epidemiology to positively impact the lives of people with autism and developmental disabilities. Her humility and professional dedication was coupled with a desire to keep her own challenges and triumphs private including her courageous efforts to stave off cancer while accomplishing so much in support of others.
Autism : the international journal of research and practice, 2022 · doi:10.1177/13623613211059641