Practitioner Development

Developing and Evaluating the Fidelity and Understandability of Plain Language Summaries of Position Statements.

Nygren et al. (2024) · Intellectual and developmental disabilities 2024
★ The Verdict

Use a two-step readability plus fidelity check to turn any policy or plan into language that people with IDD can truly understand.

✓ Read this if BCBAs who write or share policy documents, consent forms, or parent guides in clinics, schools, or adult day programs.
✗ Skip if Practitioners who only deliver scripted protocols and never create written materials.

01Research in Context

01

What this study did

The authors built a recipe for turning long policy papers into short, easy-to-read summaries. They tested the recipe with people who have intellectual or developmental disabilities.

Each summary had to pass two checks. First, a computer scored its reading grade. Second, people with IDD read it and answered questions to see if the meaning stayed the same.

02

What they found

The step-by-step method kept the original meaning while cutting the reading level. People with IDD could explain the main points back in their own words.

The study shows you can guard accuracy and still write at a fourth-grade level.

03

How this fits with other research

Wen et al. (2023) checked lay summaries in Autism Research and found they were still too hard. McQuaid et al. (2024) give the fix: add a fidelity check so the plain version truly matches the original.

Wimpory et al. (2002) already proved that easier behavior plans boost staff fidelity and client gains. The new paper widens the idea to policy statements, showing the same readability rule works across document types.

Ellingsen et al. (2014) warned that satisfaction surveys often skip low-literacy participants. Using the new plain-language steps could close that gap by making questions understandable.

04

Why it matters

If you write consent forms, behavior plans, or parent handouts, use the two-check system. Run the text through a free readability tool, then ask two clients with IDD to retell it. Adjust until they can. You will meet ethics code 4.04 (clarity) and boost real understanding without extra work.

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Paste your next parent handout into a free readability scorer, rewrite until it hits grade 4–5, then ask one client to retell it; fix any mismatches.

02At a glance

Intervention
not applicable
Design
methodology paper
Population
intellectual disability, developmental delay
Finding
not reported

03Original abstract

The American Association on Intellectual and Developmental Disabilities (AAIDD) and The Arc of the United States (The Arc) have a long history of taking jointly held positions on matters of public policy that affect people with intellectual and developmental disabilities (IDD). This article describes the methods used to develop and evaluate the understandability and fidelity of written plain language summaries of the organizations' joint position statements for an audience of people with IDD who read. Implications for adapting source material for nonreading audiences are discussed.

Intellectual and developmental disabilities, 2024 · doi:10.1352/1934-9556-62.1.74