A Call-In for Allyship and Anti-Ableism in Intellectual Disability Research.
Stop treating ID participants as subjects; invite them in as co-researchers and track your own ableist assumptions daily.
01Research in Context
What this study did
Emerson et al. (2023) wrote a position paper. They asked how researchers can stop ableism in intellectual-disability work.
The team gave four concrete moves: partner with people who have ID, audit your language, share power, and keep checking yourself.
No new data were collected; the paper is a roadmap for ethical research.
What they found
The authors found that most ID studies still treat participants as objects, not collaborators.
Their four strategies show how to flip the script so people with ID help design, run, and share the research.
How this fits with other research
McComas et al. (2025) says the same ableism lives inside ABA sessions with autistic clients. Both papers tell you to audit your goals and words; E et al. just widens the lens to all ID research.
Jimenez-Gomez (2024) takes the anti-bias idea further by adding antiracism and cultural responsiveness. If you combine the two, you audit for both ableism and racism in the same study.
Machalicek et al. (2022) turns the allyship talk into action. They give a self-management plan with daily data so you can measure your own antiracist steps; you can swap racism targets for ableism targets and use the same sheet.
Jackson-Perry et al. (2025) wants a whole new field called Critical Behavioral Studies. Their call matches E et al.’s spirit but says formal university courses, not just individual audits, are needed.
Why it matters
You can start today. Before your next study or session, ask one person with ID to co-write the consent form. Swap jargon for plain language. Add a daily tally sheet where you mark each time you assumed deficit. These micro-moves pile up into ethical, collaborative science.
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02At a glance
03Original abstract
Provoked by decades of grassroots activism, anti-ableist work is underway to advance disability rights. Intellectual disability (ID) researchers can integrate these social changes into their work by interrogating and transforming the beliefs and practices that underpin ID research. We share actionable ideas to foster anti-ableism and allyship in ID research. These include: (1) Learn from and nurture long-term, mutual relationships with people with ID; (2) Amplify the voices of people with ID in institutional structures that influence research; (3) Infuse anti-ableist frameworks into our own research; and (4) Embody a career-long commitment to disability rights, reflexive practice, and growth.
American journal on intellectual and developmental disabilities, 2023 · doi:10.1352/1944-7558-128.6.398