Perspectives about adult sibling relationships: A dyadic analysis of siblings with and without intellectual and developmental disabilities.
Adult siblings of individuals with Down syndrome feel more two-way warmth than those with autism—tailor sibling support to the diagnosis.
01Research in Context
What this study did
Rossetti et al. (2020) talked with adult brothers and sisters in pairs. One sibling in each pair had autism, Down syndrome, or another intellectual disability.
The researchers asked both siblings how they felt about their relationship today. They wanted to see if the diagnosis changed the warmth and give-and-take between them.
What they found
Pairs that included Down syndrome rated their bond as more mutual. They stayed in touch more often and shared activities.
Pairs that included autism felt less balance. The typical sibling often gave more help than they got back.
How this fits with other research
Plant et al. (2007) and Cohn et al. (2007) saw the same pattern earlier. Their large surveys also found Down-syndrome siblings felt closer and more hopeful than autism siblings.
Heald et al. (2020) looks like a contradiction at first. That survey says any intellectual or developmental disability hurts the typical sibling’s attitude and mental health. The key difference is comparison group: the 2020 survey compared siblings to families with no disability, while Zachary compared Down syndrome directly to autism.
Milevsky et al. (2022) and Abney et al. (2026) add nuance. Their interviews show all disability siblings feel both growth and stress. Zachary’s work sharpens the picture by naming which diagnosis leads to more balanced give-and-take.
Why it matters
When you plan sibling support groups or future-care talks, match the plan to the diagnosis. Families around Down syndrome may already enjoy shared activities you can build on. Families around autism may first need help creating moments where the disabled brother or sister can give something back, even small, so the typical sibling feels the relationship goes both ways.
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02At a glance
03Original abstract
Most siblings of individuals with intellectual and developmental disabilities (IDD) report positive sibling relationships. However, extant research often only examines the perspective of the nondisabled sibling; it is unclear whether siblings with IDD report close sibling relationships. Thus, the aim of this study was to understand adult sibling relationships from the perspectives of both siblings with and without IDD. Using dyadic interviews, we examined the perspectives of eight adult sibling dyads. The study was conducted in the United States. Data were analyzed using constant comparative analysis and cross-case analysis to identify themes within and across dyads. Overall, siblings with and without IDD reported enjoying spending time with one another. However, siblings with and without Down syndrome (versus autism spectrum disorder) reported more reciprocal sibling relationships, more frequent contact, and a greater range of shared activities. Implications for future research and practice are discussed.
Research in developmental disabilities, 2020 · doi:10.1016/j.ridd.2019.103538