Autism & Developmental

Perspectives about adult sibling relationships: A dyadic analysis of siblings with and without intellectual and developmental disabilities.

Rossetti et al. (2020) · Research in developmental disabilities 2020
★ The Verdict

Adult siblings of individuals with Down syndrome feel more two-way warmth than those with autism—tailor sibling support to the diagnosis.

✓ Read this if BCBAs running sibling support groups or future-planning sessions for adults with autism or Down syndrome.
✗ Skip if Practitioners who work only with single children or with young kids under ten.

01Research in Context

01

What this study did

Rossetti et al. (2020) talked with adult brothers and sisters in pairs. One sibling in each pair had autism, Down syndrome, or another intellectual disability.

The researchers asked both siblings how they felt about their relationship today. They wanted to see if the diagnosis changed the warmth and give-and-take between them.

02

What they found

Pairs that included Down syndrome rated their bond as more mutual. They stayed in touch more often and shared activities.

Pairs that included autism felt less balance. The typical sibling often gave more help than they got back.

03

How this fits with other research

Plant et al. (2007) and Cohn et al. (2007) saw the same pattern earlier. Their large surveys also found Down-syndrome siblings felt closer and more hopeful than autism siblings.

Heald et al. (2020) looks like a contradiction at first. That survey says any intellectual or developmental disability hurts the typical sibling’s attitude and mental health. The key difference is comparison group: the 2020 survey compared siblings to families with no disability, while Zachary compared Down syndrome directly to autism.

Milevsky et al. (2022) and Abney et al. (2026) add nuance. Their interviews show all disability siblings feel both growth and stress. Zachary’s work sharpens the picture by naming which diagnosis leads to more balanced give-and-take.

04

Why it matters

When you plan sibling support groups or future-care talks, match the plan to the diagnosis. Families around Down syndrome may already enjoy shared activities you can build on. Families around autism may first need help creating moments where the disabled brother or sister can give something back, even small, so the typical sibling feels the relationship goes both ways.

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Start your next sibling workshop by asking each typical sibling to name one thing their brother or sister already gives them—then brainstorm how to grow that moment.

02At a glance

Intervention
not applicable
Design
qualitative
Sample size
16
Population
intellectual disability, autism spectrum disorder, down syndrome
Finding
not reported

03Original abstract

Most siblings of individuals with intellectual and developmental disabilities (IDD) report positive sibling relationships. However, extant research often only examines the perspective of the nondisabled sibling; it is unclear whether siblings with IDD report close sibling relationships. Thus, the aim of this study was to understand adult sibling relationships from the perspectives of both siblings with and without IDD. Using dyadic interviews, we examined the perspectives of eight adult sibling dyads. The study was conducted in the United States. Data were analyzed using constant comparative analysis and cross-case analysis to identify themes within and across dyads. Overall, siblings with and without IDD reported enjoying spending time with one another. However, siblings with and without Down syndrome (versus autism spectrum disorder) reported more reciprocal sibling relationships, more frequent contact, and a greater range of shared activities. Implications for future research and practice are discussed.

Research in developmental disabilities, 2020 · doi:10.1016/j.ridd.2019.103538