Assessment & Research

The Cerebral Palsy Quality of Life for Children (CP QOL-Child): evidence of construct validity.

Chen et al. (2013) · Research in developmental disabilities 2013
★ The Verdict

The Chinese CP QOL-Child caregiver form is ready for clinical use to track quality of life in kids with CP.

✓ Read this if BCBAs serving Mandarin- or Cantonese-speaking families of children with cerebral palsy.
✗ Skip if Practitioners working with English-only families or non-CP diagnoses.

01Research in Context

01

What this study did

Chen et al. (2013) tested the Chinese version of the CP QOL-Child caregiver form. They gave the 66-item survey to 120 parents of kids with cerebral palsy. Then they ran a confirmatory factor analysis to see if the seven quality-of-life domains held up in Chinese culture.

02

What they found

The seven-factor model fit the data well. All domains—social, emotional, physical, school, pain, access, family—loaded cleanly. The team concluded the tool has good construct validity for Chinese-speaking families.

03

How this fits with other research

Kocher et al. (2015) used the original English CP QOL-Child to track participation declines. Their work shows the same tool can spot kids who need extra help over time. Samyn et al. (2015) warn that questionnaires and performance tasks measure different things. So use the CP QOL-Child for parent views, not as a stand-in for motor or cognitive tests. Howe et al. (2017) also validated a kids’ tool, but for perceptual-motor skills. Together these papers give you a menu: pick the right validated measure for the domain you care about.

04

Why it matters

You now have a free, validated Chinese caregiver form that takes 10 minutes. Use it at intake and every six months to track quality-of-life changes. Pair it with direct observation or motor tests when you need the full picture.

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Download the Chinese CP QOL-Child, give it to your client’s parent, and add the seven domain scores to your baseline report.

02At a glance

Intervention
not applicable
Design
other
Sample size
312
Population
other
Finding
positive

03Original abstract

The Cerebral Palsy Quality of Life for Children (CP QOL-Child) is the first health condition-specific questionnaire designed for measuring QOL in children with cerebral palsy (CP). However, its construct validity has not yet been confirmed by confirmatory factor analysis (CFA). Hence, this study assessed the construct validity of the caregiver proxy-report version of the Chinese version of the CP QOL-Child in children with CP using CFA. A total of 312 children with CP (mean age: 8.59 years, SD: 2.52 years) and their caregivers participated in this study. The Chinese version of the CP QOL-Child was completed by the caregivers of children with CP. Then, CFA was applied to evaluate the seven-factor measurement structure of the CP QOL-Child. The seven-factor CFA model had an adequate fit to our data as judged by χ(2) statistic and various goodness-of-fit (GOF) indices, including the root mean square error of approximation (RMSEA). This study provided empirical evidence of the construct validity of the CP QOL-Child to support its use with children with CP in the Chinese speaking society.

Research in developmental disabilities, 2013 · doi:10.1016/j.ridd.2012.11.025