Assessment & Research

Operationalisation of quality of life for students with intellectual and developmental disabilities to improve their inclusion.

Heras et al. (2021) · Research in developmental disabilities 2021
★ The Verdict

A teacher-rated quality-of-life item bank is ready to measure how included students with IDD feel at school.

✓ Read this if BCBAs writing IEP goals or inclusion plans for elementary or middle-school students with IDD.
✗ Skip if Clinicians who only serve adults or children with profound multiple disabilities.

01Research in Context

01

What this study did

A team ran a four-round Delphi survey with 14 teachers. The goal was to pick quality-of-life items that fit students with intellectual or developmental disabilities in regular classrooms.

Each round asked teachers to rate, re-word, or drop items until only the clearest, most useful ones remained.

02

What they found

The final pool of items passed a content-validity check. Teachers agreed the items capture what 'a good life at school' looks like for these students.

The tool is now ready for pilot testing with real students.

03

How this fits with other research

Torelli et al. (2026) extends this work. They showed that teaching daily-life skills in kindergarten boosts social behavior for kids with IDD. You can use the new QoL items to see if those skills truly lift classroom inclusion.

Bearss et al. (2022) also extends the idea. They reworked a parent program for teachers through stakeholder feedback, just like the Delphi used teacher feedback to shape the QoL tool. Both studies show that educator input makes interventions school-ready.

Vassos et al. (2023) looks at first like a clash. Parents of children with profound ID say only close family should judge quality of life, while Heras et al. (2021) puts teachers in the judge seat. The difference is severity: parents speak for children with the most complex needs, whereas teachers rate students who still attend mainstream classes. Use the new tool for the latter group and keep parent report for the former.

04

Why it matters

You now have a short, teacher-friendly item bank to track inclusion outcomes. Add it to your yearly IEP review or class-wide screening. A quick teacher rating can flag which students feel left out before problems turn into referral forms.

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→ Action — try this Monday

Pick two items from the new pool, add them to your weekly teacher check-in sheet, and track one student's sense of belonging for a month.

02At a glance

Intervention
not applicable
Design
other
Population
intellectual disability, developmental delay
Finding
positive

03Original abstract

BACKGROUND: Quality of life (QoL) is regarded as a framework to enhance inclusive education outcomes in different domains for all students, especially for those with intellectual and developmental disabilities (IDD). Assessment tools are needed to implement this framework. Although there is a long trajectory of QoL assessment in people with IDD, we identify a lack of instruments for students with IDD who attend to general education contexts. AIMS: The goal of this study is to produce a pool of items in order to develop a field-test version of a QoL instrument for this target group. METHODS: 14 educational professionals participated in a four-round Delphi study, assessing the content of the items proposed according to four criteria (suitability, importance, observability and sensitivity). RESULTS: The results of this study provided evidence of content validity regarding the pool of items that will be included in a field-test version. CONCLUSIONS: The results obtained are important for the development of a QoL assessment tool to improve the inclusion of students with IDD in general education settings.

Research in developmental disabilities, 2021 · doi:10.1016/j.ridd.2021.104093